Engagement ethics

Whilst most research programmes will adhere to the ethics policies of their institutions, these often benefit from – and in terms of informed consent require – their explanation, discussion and agreed mutual interpretation with the communities most directly affected by the research. Whilst this is true in general, it may be considered an even more important issue in contexts where, for political or cultural reasons, there may be little shared understanding of the issues or a lack of trust.

Collection:

Content type: Engagement
Kamuya, Dorcas et al 2017 Gendered negotiations for research participation in community-based studies: implications for health research policy and practice
MacQueen, Kathleen et al 2015 Evaluating community engagement in global health research: the need for metrics
Marsh, Vicki et al 2008 Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya
Marsh, Vicki et al 2010 Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya
Marsh, Vicki et al 2013 Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya
Molyneux, Sassy 2013 Consent and Community Engagement in diverse research contexts
Molyneux, Sassy et al 2016 Public/community engagement in health research with men who have sex with men in sub-Saharan Africa: challenges and opportunities
Pratt, B. 2016 Governance of Transnational Global Health Research Consortia and Health Equity
Tindana, Paulina et al 2015 Community engagement strategies for genomic studies in Africa: a review of the literature